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kye_pia
27 Oct

No ordinary family

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Running 10km in under 50mins is a great accomplishment for any 14 year old, but Kye Kanemura has bigger ambitions. Kye finished his “favourite running event” the Twilight Bay Run 10km in 49min 35sec on 24 September supporting his little sister, Pia who is wheelchair bound. At such a young age Kye has taken on the task of fundraising to try and find a cure for Rett Syndrome and has created a facebook page where the community can assist. Pia suffers from Rett Syndrome, a neurodevelopmental disorder, leaving Pia with the inability to walk, talk or eat on her own.

The inspirational young teen has competed in a range of sporting events with his sister by his side, ranging from triathlons through to fun run events. Kye is eager to share the joy of running and fitness with his little sister, something which she would not be able to experience by herself.

Kye is currently on a mission to raise enough money to buy Pia a new wheelchair through their GoFundMe page so that Pia is more comfortable when she competes. While Pia cannot communicate through speech, Kye says he can tell Pia enjoys racing with her him. “She’s always awake during it, which means she’s enjoying it and she sometimes even smiles when I train with her” he said.

Parents AJ and David are very proud of their son’s achievements. David says Kye and Pia share a very special bond.
“It’s a sure thing when Kye is around, he will always make Pia laugh and it’s obvious for anybody to see.” said David.

October is Rett Syndrome Awareness Month where family and friends of those suffering from Rett Syndrome are encouraged to tell their stories to help increase awareness of this debilitating disease.

You can help Kye put a smile on Pia’s face and assist in purchasing a new wheelchair online through Kye’s GoFundMe page.

Find more information about Rett Syndrome here.

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